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Title edit
ALS MND Alliance - Home Page
Description edit
Excerpted from the website:
- Background
- Amyotrophic lateral sclerosis, or motor neurone disease, is a muscle wasting condition which affects individuals and those who care for them across the world. To help people with the disease, groups of people have come together to form associations (which are listed under the Directory of Associations)
- The International Alliance of ALS/MND Associations was founded in November 1992 to provide a forum for support and the exchange of information between the worldwide associations. More than 50 national patient support and advocacy groups from over 40 countries worldwide have joined together to form the International Alliance.
- The Alliance functions primarily as a forum for the exchange of information on all aspects of the disease, research and management of care as well as the provision of support through networking and sharing the development of ideas on good practice.
