Amend.org.uk
Title
A.M.E.N.D - Welcome
Description
Excerpted from the website:
- The Association for Multiple Endocrine Neoplasia Disorders ( AMEND) is a patient support group and UK registered charity (no. 1099796) that was set up in 2002 by Liz Dent and her daughter Emily Fazal who both have MEN1 following a meeting with the Canadian MEN Society. Liz and Emily were concerned that, being diagnosed with a rare condition, there was little information to be found regarding best treatment, and even fewer fellow patients with whom to be in contact to share experiences – a process that so many people find helpful.
- AMEND have a number of trained Telephone Buddies who are patients and carers affected by MEN themselves - talking to someone else in a similar situation may make things easier to cope with.
