BoneTumor.org has information and contacts for people with this illness
About BoneTumor.org
Click "ask a question" to send us your question. Unless you are a physician asking about a patient, a fee of $20 is required, paid securely via paypal. Your fee entitles you to a complete answer to your question and allows you to ask for additional information or clarification. You can browse the questions others have asked - just click on the "browse" link.
