MitralValveProlapse.com is an informational resource for sufferers of the disease

Title

Help for mitral valve prolapse syndrome and dysautonomia

Description

Those affected with MVPS/D have often been frustrated with traditional medical care. They have frequently felt isolated and abandoned. Physicians, too, have been frustrated because of the lack of adequate diagnostic testing, tools, and effective treatment. When confronted with repetitive complaints by patients, doctors often respond with simple avoidance and patronizing comment "it's all in your head."

About our organization: The founders are Jim Durante, Bonnie Durante, and Cheryl Durante Bihun. As fellow sufferers, we are all passionately dedicated to spreading the word and educating people about Mitral Valve Prolapse Syndrome and Dysautonomia. Before starting our nonprofit, charitable organization we traveled over 30,000 miles educating ourselves about this syndrome. Our support group was formed in September of 1991, and shortly after that we began publishing a bimonthly newsletter. We have helped to organize and have spoken at five MVPS seminars in Illinois. Please contact us for future support group dates. We encourage MVPS patients and their families to attend.

"The authors clearly did their homework. I suspect that this will become the new Bible for MVP, and I send a hearty congratulations!" Lyn Frederickson, RN, MSN, author, "Confronting Mitral Valve Prolapse Syndrome."

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