Ohf.org
Title
Oxalosis and Hyperoxaluria Foundation (OHF) - Home
Description
The OHF was founded in 1989 thanks to the care, interest and actions of concerned parents and families, who were frustrated and confused and not sure where to turn after discovering that a loved one was diagnosed with a rare genetic disorder called Primary Hyperoxaluria (PH), which results in the never-ending formation of kidney stones caused by a defective enzyme in the liver.
The families were in search of hope, encouragement and information regarding PH. Together, the families pooled their time, talent and resources to find answers about this rare disease. They began to formalize a small group of families, physicians and researchers and eventually establish the OHF, a foundation which continues to be the leader in the world in finding better treatments and ultimately a cure for Oxalosis, PH and related stone disease.
Today, the OHF has grown from a parent support group composed of a handful of concerned hard working families into an international organization leading the fight to end Oxalosis, PH and related stone disease. There are now over 500 volunteers from all walks of life who give generously of their time and talents to implement the OHF programs.
Contact
- Oxalosis and Hyperoxaluria Foundation
-
- St. Louis Missouri
- United States 63129
-
- +1.3148463645
Additional Information
Related Domains
- Agt
- Alanine Glyoxalate
- Associations
- Calcium Oxalate Stones
- Conditions And Diseases
- Dialysis
- Digestive Disorders
- Enteric
- Enzyme Deficiency
- Family Support
- Genetic Disorder
- Health
- Hyperoxaluria
- Kidney Liver Transplant
- Kidney Stones
- Liver
- Liver Disease
- Metabolic Disease
- Orfan
- Orphan Diseases
- Ox Absorb
- Oxalate
- Oxalic Acid
- Oxalosis
- Oxilate
- Ph1
- Ph2
- Phi
- Phii
- Peroxisome
- Pyridoxine Deficiency
- Rare Diseases
- Renal Disease
- Research
- Thiamine
- Urinary
- Urination
- AGT
- Conditions and Diseases
- Kidney-liver Transplant
- Ox-absorb
- PH1
- PH2
- PHI
- PHII