Qtsyndrome.ch
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QTsyndrome.ch - To Spread The Word Of Long-QT Syndrome
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QTsyndrome.ch started in 1997 as an amateur internet project and was first run under the name of "European Long QT Syndrome Information Center". Launched by a Swiss long QT syndrome sufferer and a Swiss webdesigner, QTsyndrome.ch aimed at collecting information about a disease that was little known publicly at this time by reaching a worldwide audience.
Surprised by the large amount of e-mails sent by patients and even medical trained people asking for help, the "European Long QT Syndrome Information Center" was soon turned into an independent non-profit information provider for patients with long QT syndrome and health professionals.
The project's main objective has not changed since then: It is to provide comprehensible information on long QT syndrome for patients and their relatives and to be a rudimentary guide for medical trained people.
