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Title edit
Rett Syndrome Research Foundation: Welcome
Description edit
Introduction to RSRF
The RSRF was founded in late 1999 by a small but passionate group of parents who were concerned by the lack of research being conducted on Rett Syndrome. Monica Coenraads, Wendy Friedman, Cory Henkel, Anna Luce, Gordon Rich and Jeanne Sinclair were confident that an organization focused aggressively and exclusively on biomedical research would accelerate the discovery of treatments and a cure for this devastating disorder.
Today RSRF is the world's leading private funder of Rett research. In the last five years RSRF has funded 82 projects at 57 of the world's premiere institutions totaling approximately $ 8.8 million. Furthermore, RSRF organizes the only annual scientific meeting devoted to Rett Syndrome. Each June RSRF convenes over 100 researchers and clinicians from around the world for a three day Rett Syndrome symposium
As a volunteer driven organization RSRF has raised millions since our inception. The foundation has proven to be fiscally responsible by directing 97% of each dollar donated directly to program services.
Contact edit
- TheRettSyndrome Research Foundation
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- Cincinnati OH
- United States 45246
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- +1.5138743020
