SpecialFriends.org
Title
Welcome
Description
Excerpted from the website:
- The Special Friends Foundation (SFF) is a nonprofit organization established in 1997 by Chris and Carol Garavente. Their son, Louis, is diagnosed with Rubinstein Taybi Syndrome. The Special Friends Foundation is dedicated to providing information and resources to individuals with RTS and their families. The Foundation provides assistance to cover expenses incurred due to RTS that are not covered by medial insurance or Medicaid. SFF is honored to have worked directly with Dr. Rubinstein. The Special Friends Foundation continues to work with the University Affiliated Cincinnati Center for Development Disorders to support ongoing RTS research and the Louis Garavente Database for RTS research.
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